An Everyday Hero in Mom: Navigating Down Syndrome Regression Disorder
There is a quote from author Lance Conrad that states, “I can imagine no heroism greater than motherhood.” For Cristina Rothfuss, a mother of four, navigating a rare condition to […]
Down syndrome collaborators now published in Alzheimer’s and Dementia
“Adapting prescribing criteria for amyloid‐targeted antibodies for adults with Down syndrome” published in the journal of the Alzheimer’s Association Drawing attention to policies currently preventing people with intellectual disabilities from […]
LuMind IDSC statement on FDA Advisory Committee for promising Alzheimer’s drug, donanemab
LuMind IDSC is encouraged by today’s news that the U.S. Food and Drug Administration (FDA) is requesting more time and information before making a decision on the status of donanemab, […]
Message from the CEO: a look ahead to 2024
“I want to enjoy my life for a long time. I want to grow old just like everyone else.” These two sentences, spoken by a 37-year old man with Down […]
Progress in 2023 – our annual impact report
Thanks to the extraordinary support and engagement of the Down syndrome community, LuMind IDSC is celebrating a year of outstanding progress. In accelerating research, expanding connections, raising voices, and influencing […]
Reuters Article: Barriers to Latest Alzheimer’s Treatments for Down Syndrome Community
Hampus Hillerstrom, CEO of LuMind IDSC Foundation and father to a child with Down syndrome, knows about the barriers people with Down syndrome face in accessing the latest Alzheimer’s treatments. […]
LuMind IDSC names new Director of Community Programs
Down syndrome leader Christina Reaves will lead community programs for LuMind IDSC Following a five-month, national search, LuMind IDSC Down Syndrome Foundation announced the appointment of Christina Reaves as the […]
Boston Globe OpEd People with Down Syndrome Now Left Out of Treatment
LuMind IDSC and The Arc of Northeast collaborated on an OpEd that was recently published in The Boston Globe. Authors Hampus Hillerstrom and Jo Ann Simons are leaders of their […]
Key updates on Down syndrome community access to new Alzheimer’s drugs
Five takeaways for the Down syndrome community: Updates on accessing the new Alzheimer’s drugsLuMind IDSC is working on many levels to break down the barriers that currently prevent people with […]
Meet the Black Down Syndrome Association
by guest contributor, Crystal Lotterberry, co-founder of the Black Down Syndrome Association About the Black Down Syndrome Association The Black Down Syndrome Association is helping to create a more inclusive […]