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They Did.

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I Can.

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We Will.

[/fancy_box]The Down syndrome community has already fought – and won – many significant battles. Because of these thousands of victories – in policy, in doctors’ offices, in school districts, in the media, and in our own lives – people with Down syndrome are living more independently and for longer than ever before.

But there are still battles to be won. LuMind IDSC invites you and your family to become part of the next fight: for research that will give us answers.

Because they did, I can, and we will advance research. Scientific research today will be the foundation of a healthy and independent future for people with Down syndrome.

• Life expectancy for adults with Down syndrome has increased from age 10 in the 1960s to age 25 in the 1980s to age 65+ today. The world has never seen an entire generation of elderly people with Down syndrome – until now!

• Between 1979 and 2003, the number of babies born with Down syndrome increased by about 30%. That means an even larger generation of people with Down syndrome are 20-40 years old today.

• According to researchers, almost 60% of children with Down syndrome have abnormal sleep habits by age 4, with the prevalence of obstructive sleep apnea nearing 100% by adulthood. Good sleep is essential to so many aspects of health and happiness that a wide variety of sleep apnea solutions will be critical in coming years.

• Researchers estimate that the lifetime risk of Alzheimer’s disease (AD) is more than 90%, and is the leading cause of death for adults with Down syndrome. Compounding the prevalence of AD in the Down syndrome community is the shockingly early onset of dementia symptoms, typically around age 55.

Michelle Sullivan: mother and athlete.

• MOSAIC sleep apnea study for children by the University of Arizona.
• Challenges of Caregiving Survey: If you are a caregiver for someone with Down syndrome who is age 18 or older.
• Longitudinal Investigation for the Enhancement of Down Syndrome Research (LIFE-DSR).
• Hypoglossal Nerve Stimulator Clinical Trial: Sleep Apnea

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Research in Action

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Community Spotlight

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Research News

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