Caregivers Evaluate Independence in Individuals with Down Syndrome
Institutions: Division of Medical Genetics and Metabolism at Massachusetts General Hospital, LuMind IDSC Foundation, the Department of Pediatrics, Harvard Medical School, Cincinnati Children’s Research Foundation and the Division of Physical Medicine […]
Report of the Neuroatypical Conditions Expert Consultative Panel
EXAMINING ADULTS WITH NEUROATYPICAL CONDITIONS FOR MCI/DEMENTIA DURING COGNITIVE IMPAIRMENT ASSESSMENTS: REPORT OF THE NEUROATYPICAL CONDITIONS EXPERT CONSULTATIVE PANEL July, 2022 Project Principals: Matthew P. Janicki, PhD, Jim Hendrix, PhD, Philip […]
Results from T21RS’s COVID-19 International Survey on Vaccination of Individuals with DS
January 26, 2022 In a study funded by the LuMind IDSC Foundation, the T21RS COVID-19 Initiative launched an international survey to obtain information on the safety and efficacy of COVID-19 vaccines for individuals […]
Five Recent Down Syndrome Research Data Articles to Stay Up to Date
January 25, 2022 Recently, two institutions in the Down Syndrome Clinical Trials Network (DS-CTN) published five studies about Down syndrome-related health and wellness, ranging from infectious diseases to mental health, skills, and […]
Publication Illustrates Need for Therapies to Address Immune Aging in Down Syndrome
Impaired immune function is a clear and growing threat to the health and well-being of people with Down syndrome (DS). Understanding how and why the immune system is altered in […]
LuMind IDSC Statement on CMS Proposed Coverage for Anti-Amyloid AD Drugs
January 12, 2022 During the past year, LuMind IDSC remained cautiously optimistic about treatment possibilities that the development of new drugs for Alzheimer’s disease may bring to the Down syndrome community. […]
LuMind IDSC, NDSS and NTG Urge the Advisory Council to Take Action on the Needs of the DS Community
October 20, 2021 LuMind IDSC, the National Down Syndrome Society (NDSS), and the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) recently submitted a formal letter to the […]
LuMind IDSC and Dr. Nicole White Publish: Parental Perspectives on Research for Down Syndrome
October 18, 2021 Dr. Nicole White, Hampus Hillerstrom, LuMind IDSC and a team of experts, recently published an article in the Journal of Applied Research in Intellectual Disabilities, that delves into […]
LuMind IDSC and Team of Experts Publish Article on Aging with DS and the Future of Research
Dr. James Hendrix, LuMind IDSC’s Chief Scientific Officer, along with a team of Down syndrome experts recently published an article in the Journal of Clinical Medicine, as part of the special issue […]
Expert Chat: A Conversation with Dr. Nicole White
October 7, 2021 From mom of four to Down syndrome researcher. Research Spotlight sat with Nicole White and discussed some of the challenges that prevent parents and caregivers from getting […]